Name
: Keratoconus Australia
Link : Keratoconus
Australia Inc
About :
Keratoconus
Australia Inc was founded in 2000 and is run solely by volunteers.
Its main aim is to raise awareness, promote research and act as
a representative body for people with Keratoconus. It provides,
where necessary, counseling, support and referrals to the people
with Keratoconus and their families. Full membership is only open
to people with Keratoconus or the parents of children who have
Keratoconus. However, anyone can become a supporter. This is another
great website with a wealth of information.
Website
:
It has a very good common questions list where it discusses Keratoconus
in easy to understand terms. It also contains links to very good
Keratoconus related information. In addition, you can order videos
of three conferences that offer interesting information about
Keratoconus, corneal transplants and contact lenses. Such material
makes it another great Keratoconus resource.
Interactive fourms :
Keratoconus Australia has an "Ask
the Expert" section where you can e-mail general questions
about Keratoconus and related issues. The answer will be e-mailed
back to you.
Name : National
Keratoconus Foundation (NKCF)
Link : National
Keratoconus Foundation
About :
The
NKFC has an abundance of information on Keratoconus constantly
updated with contributions from world experts in Keratoconus.
Its section on contact lenses is particularity good. It also has
a newsletter with the latest version online. This again is an
excellent source of information with contributions from various
eye care professionals and is a wonderful resource for people
with Keratoconus.
Website
:
The
NKFC has a wealth of information on Keratoconus constantly updated
with contributions from world experts in Keratoconus. It's section
on contact lenses is particularity good. It also has a newsletter
with the latest version online. This again is an excellent source
of information with contributions from various eye care professional
and a wonderful resource for people with Keratoconus.
Interactive fourms :
The
NKFC doesn't have a message board although it does have a great
e-mail based service where members can exchange experiences and
give support to each other by e-mail. You can also contact NKCF
directly for information. NKCF is a great asset to the Keratoconus
community.
Name : UK
Keratoconus Self Help and Support Group
Link : UK
Keratoconus Self Help and Support Group
About :
The
UK Keratoconus Self-help group is a wonderful resource of support
and information for people with Keratoconus. It is primarily aimed
at people in the UK; however its website has an abundance of information
for all. Its main aims are to provide information and support
for people with Keratoconus in the UK. It also organizes regular
meetings for members, often with guest speakers. It produces a
regular news letter, along with raising money for research, awareness
of Keratoconus, and to run the web site.
Website
:
Like the NKFC, it is also a great source of information on Keratoconus
which is constantly updated. It has a great section on contact
lenses, along with a wonderful newsletter. It has very professional
and thought out answers to questions posed on the Mini Ark procedure.
Interactive fourms :
The UK Self-help group offers a message
board forum which can also be turned into an e-mail based forum
depending on your preferences. It also has a telephone contact
number and a "Members Only" section which has questionnaires
and surveys.
Name : KC
Watch (KC Support for Irish Suffers)
Link : http://kcwatch.net/
About :
A
relatively new website for Irish suffers created by Ray, who has
been around KC websites for almost as long as the web has existed.
Website
:
KC Watch is a very user friendly website and it is very easy to
navigate around. It holds a mass of information on living with
Keratoconus in Ireland and has a KC dairy by Ray that is regularly
updated. Members can find information on the current cost of lenses
and drops and there is a also a news section giving up to date
information on what's news in the world of KC.
Interactive fourms :
KC Watch is in the form of a blog and
members can quiet easily go into the site and make comments.
Forgien
language self help groups and charities
Dutch Site
: www.nlkc.nl
Germany
: http://www.keralens.de
Sweden
: http://hem.passagen.se/mglader/keratoconus.htm
France
: http://www.keratocone.net
Have we missed a chartiy of self help group? Please
e-mail us and let us know.
